I’m Samuel, 21, suffering from ME/CFS and dying in 12 days.

Please help me spread my story and raise awareness for my illness and its injustices!

Since a corona infection, I have been suffering from the severe multisystem disease ME/CFS. For me it was Corona, but it can also be caused by other viral or bacterial infections. The average quality of life is extremely low with this disease, as the study in the picture shows.

However, there are also those who are severely affected, like me, whose suffering reaches levels of torment unimaginable for healthy people.

Because of this illness, I have an extremely limited energy window. I have to lie in bed 24 hours a day and not move too much; it has to be constantly dark because I can’t stand light. I wear double hearing protection because I can’t stand any noise either. I can’t watch TV for a second or watch videos on my cell phone because moving things overwhelm my nervous system and cause unbearable suffering. I can’t listen to music or podcasts. I can’t even talk to my own mother, who cares for me, because listening is too tiring and even talking is now completely impossible. So I have to communicate with a pen and pad. I can only use my cell phone for messages for a few minutes to seconds. Sometimes not at all. (This message was painfully pre-recorded.)

Going to the toilet is sometimes difficult, showering is currently impossible due to the extreme physical weakness and sensory overload. Receiving visitors and talking or exchanging ideas with someone about it is also far too strenuous and causes suffering and torment.

But that’s not the worst of it. The worst thing about this illness is the key symptom PEM (POST EXERTIONAL MALAISE), which ensures that every slight exceeding of my energy limits leads to a so-called crash and a permanent worsening of all my symptoms and my general condition. So I have to pay bitterly for every attempt to live a little and then end up in an even worse state than before.

Even if I’m just lying in bed, alone with my thoughts, I have to be careful because thoughts that are too positive or too negative mean a crash and thus a worsening of my condition.

Even worse than the restrictions that limit your life to sleeping or trying to sleep are the physical sufferings of this disease. I would describe it like drowning and burning at the same time. They are always there, this feeling is there all the time, but especially in crashes. The body thinks it is dying because it is running out of energy and therefore triggers an extreme state of suffering.

So bad that you often think there is only one option left. Many people see no way out; the suicide rate is extremely high. My condition is also heading in a direction where I may need to be fed artificially.

Therefore, I will seek euthanasia in 12 days.

But my death should not be in vain. This disease now affects around 1% of the population in Austria, almost 8 times as many as MS. However, due to the restrictions, those affected disappear completely from the scene and are unable to draw attention to themselves.

THERE IS NO ONE MEDICINE FOR THIS DISEASE. And in Austria there is no single point of contact, even though one in 100 people is affected. Most doctors don’t even know about this disease?! The PVA itself calls us charlatans and free riders. Many of those affected receive exactly €0 per month. Not a cent from the PVA, not a cent from the AMS.

That’s why I ask you to spread my story, get it into the media. Share them on social media. Help me to draw attention to this terrible disease with my death!

My message is: ME/CFS KILLS!

Tldr: Terrible illness, many of those affected have no care, I am using euthanasia and ask you to generate attention for the illness and bring my story to the media.