> For the second day in a row, the company’s top executive was pummeled on Capitol Hill over concerns that the company is about to transfer roughly 15 million people’s genetic information to a pharmaceutical company or a newly created firm — without any guarantee that it would not be misused.
> Interim CEO Joe Selsavage repeatedly asserted that customers could easily make those deletion requests, even though a surge had temporarily shut down the company’s website. But things took a turn when Republican Sen. Josh Hawley, who represents Missouri, where the company recently filed its bankruptcy case, pointed out that 23andMe’s legal **fine print** actually says the company will retain your genetic information even if you choose to delete your account.
> “In the wrong hands, it can enable **dystopian discrimination** and surveillance can be used by our adversaries,” Sen. Dick Durbin said. Wednesday’s hearing presented a rare, bipartisan moment in Washington — save for a brief detour by Republican Sen. Katie Britt, who used it as an opportunity to question the science-company executive about gender identity.
This is the hill they wanna die on? You gotta wonder if their genetic data might out them as non-humans?
WillBigly96 on
I would bet $100 that it was always part of the plan to gather people’s data then sell it off
IamGeoMan on
“I belonged to a new underclass, no longer determined by social status or the color of your skin. No, we now have discrimination down to a science.”
-Vincent Freeman, Gattaca
HiFiGuy197 on
15 million looks like just 5 percent of the country, and I bet that many are closely related (e.g. one family gets excited and does a lot of testing, but most others avoid it entirely.) Is that a lot?
There are so many other good choices these days, but is this the actual root of the “dystopian” future?
We are living in a dystopian present. 23andme is really low on a long list of concerns.
ploptart on
Jogs Hallway worried the public will know for certain why he has a horse face
sp3kter on
THEN WHY THE FUCK DID YOU ALLOW THIS COMPANY TO EXIST IN THE FIRST PLACE
Mecha-Dave on
At this point it’s selling itself to itself so I’m not TOO worried at this point. Kind of funny the ex-CEO was able to come up with enough money to buy the company, but not to save it.
I tried to download my data, but it was taking much longer than they said (like weeks). So I just opted to have my data deleted instead. I figure there is a 50/50 shot that didn’t happen at all.
THEMATRIX-213 on
Just another business going out of business, nothing new here.
Odeeum on
Someone still needs to walk me through what someone’s going to do with my genome. Its literally a text file of CTGA randomized over and over.
How does that allow someone to get into my checking account or steal my house?
15 Comments
> For the second day in a row, the company’s top executive was pummeled on Capitol Hill over concerns that the company is about to transfer roughly 15 million people’s genetic information to a pharmaceutical company or a newly created firm — without any guarantee that it would not be misused.
> Interim CEO Joe Selsavage repeatedly asserted that customers could easily make those deletion requests, even though a surge had temporarily shut down the company’s website. But things took a turn when Republican Sen. Josh Hawley, who represents Missouri, where the company recently filed its bankruptcy case, pointed out that 23andMe’s legal **fine print** actually says the company will retain your genetic information even if you choose to delete your account.
> “In the wrong hands, it can enable **dystopian discrimination** and surveillance can be used by our adversaries,” Sen. Dick Durbin said. Wednesday’s hearing presented a rare, bipartisan moment in Washington — save for a brief detour by Republican Sen. Katie Britt, who used it as an opportunity to question the science-company executive about gender identity.
Aren’t they selling themselves to their former CEO through a non-profit? source: https://www.theverge.com/news/687123/23andme-anne-wojcicki-acquisition
This is the hill they wanna die on? You gotta wonder if their genetic data might out them as non-humans?
I would bet $100 that it was always part of the plan to gather people’s data then sell it off
“I belonged to a new underclass, no longer determined by social status or the color of your skin. No, we now have discrimination down to a science.”
-Vincent Freeman, Gattaca
15 million looks like just 5 percent of the country, and I bet that many are closely related (e.g. one family gets excited and does a lot of testing, but most others avoid it entirely.) Is that a lot?
There are so many other good choices these days, but is this the actual root of the “dystopian” future?
This should be moved here:
https://www.reddit.com/r/NoShitSherlock/s/HmwiOBUWss
We are living in a dystopian present. 23andme is really low on a long list of concerns.
Jogs Hallway worried the public will know for certain why he has a horse face
THEN WHY THE FUCK DID YOU ALLOW THIS COMPANY TO EXIST IN THE FIRST PLACE
At this point it’s selling itself to itself so I’m not TOO worried at this point. Kind of funny the ex-CEO was able to come up with enough money to buy the company, but not to save it.
[Anne Wojcicki just regained control over the company.](https://www.cnbc.com/amp/2025/06/13/anne-wojcicki-to-buy-back-23andme-and-its-data-for-305-million.html) Interesting timing.
I tried to download my data, but it was taking much longer than they said (like weeks). So I just opted to have my data deleted instead. I figure there is a 50/50 shot that didn’t happen at all.
Just another business going out of business, nothing new here.
Someone still needs to walk me through what someone’s going to do with my genome. Its literally a text file of CTGA randomized over and over.
How does that allow someone to get into my checking account or steal my house?