NHS urged to update website after renaming polycystic ovary syndrome

So we have the time and money for this bullshit in the nhs but actually treating the women needing gyno havr some of the longest wait times.

Its a farce, I hope every one of these muppets that have taken money for their vanity project are constipated for life

I have every symptom of PCOS but no cysts on my ovaries. The hair growth on my chin is seen as “aesthetic”, the lack of periods, the inability to lose weight after months of calorie deficit and intense weight training and cardio. But no. Bloods are fine, nothings wrong. Miscarriage and depression alongside adhd and whatever else. I hope they change it because it means my “normal” functioning thyroid might be checked more thoroughly. I am 4’8” and my bmi is 30 even though I am more fit than most people my age. Something is wrong. I beg them to change it so I can seek answers. My sister has PCOS and every symptom I do, but she has cysts. It needs to change.it runs in families and they need to give us answers. Nothing is that simple.

As a husband of a woman with PMOS, I am damn happy with this change.

My wife spent almost her whole life with gynecologists downplaying her condition which had led to numerous hormonal issues.

It was only when I started doing my own research with a deep dive in the literature that we got to improve her health by targeted supplementation. And we took a gamble because neither of us are trained medical experts or something

And you may ask, “will a name change solve all the issues? “. No, but it is a good start

The current diagnostic criteria also desperately needs an update. I was incorrectly diagnosed as a teenager with PMOS when I actually had hypothalamic amenorrhea.

The Rotterdam criteria for PMOS specifies one must show two of the following:
 
1. Irregular or Absent Ovulation
2. Hyperandrogenism
3. Polycystic Ovaries on Ultrasound
 

I had 1 and 3, irregular periods and polycystic ovaries, but my hormones were normal. I was underweight. When I was diagnosed with PMOS at 18 the doctor told me I would inevitably gain significant weight in my early twenties which I would struggle to lose, and would probably develop male pattern hair growth. Being only a teenager and very insecure I developed an eating disorder because I was terrified of this inevitable excessive weight gain. I spoke to a more senior doctor later on and she reviewed my bloods and ultrasound, as well as my symptoms, and concluded it was much more likely to be HA.

I recovered from my ED a couple of years ago and am now almost 24. Only in the last year have I made it comfortably into the lower end of the healthy weight range. That doctor can do one, she wrecked years of my life with a misdiagnosis and an extremely inappropriate and unnecessarily bleak prognosis that doesn’t even represent the reality of PMOS, which exists on a spectrum of severity and varies in its presentation.